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Woman Sues HSE Over Access to Drug for Rare Disease
A 28-year-old woman from Co Kilkenny, diagnosed with the rare neuromuscular disease Friedreich’s ataxia at age 12, is suing the Health Service Executive (HSE) over alleged delays in determining her application for access to a crucial drug, citing 'irreversible consequences'.
28 Jul, 18:16 — 28 Jul, 18:23
The Story
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Source Diversity
Source Diversity
Moderate (27/100)2 sources— more sources would strengthen this score15/33
Spectrum spread— 2/5 buckets covered8/33
Far L
Left1
Left (1)
irish-times
Center
Right1
Right (1)
irish-independent
Far R
Geographic diversity— 1 region4/34
Ireland2
ℹAll sources from Ireland region
ℹOnly 2 sources cover this story
Sources
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irish-timesHigh15h ago
Co Kilkenny woman diagnosed with rare disease sues HSE over access to drug
Emily Felix (28) was 12 when she was diagnosed with Friedreich’s ataxia, a progressive neuromuscular disease
Read full article →irish-independent15h ago
‘Irreversible consequences’ – Woman with Friedrich’s Ataxia sues HSE over alleged delays in application determination
Felix’s lawyers submit that delaying her access to the drug has “real and irreversible consequences”.
Read full article →Coverage Timeline
First report: irish-independent · 28 Jul, 18:16|Full coverage: 2 · 8m|Window: 8m
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