Gene Therapy in the US Offers Hope for 11-Year-Old Lana with Rare Genetic Disease

Eleven-year-old Lana, diagnosed with a rare genetic disease at age seven, is seeking gene therapy in the United States as her only hope to combat recurring muscle spasms and epileptic seizures.

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24urSlovenian1d ago

Genska terapija v ZDA edino upanje za 11-letno Lano

Vsak korak, vsak gib, vsako varno premikanje je Lanina bitka za jutri. Danes 11-letni deklici so pri sedmih letih diagnosticirali redko gensko bolezen. Ta med drugim povzroča ponavljajoče se mišične trzaje, zelo pogosti so tudi epileptični napadi in padci, vse to pa lahko otroka priklene na invalidski voziček. A za Lano obstaja upanje – genska terapija, ki jo razvijajo v ZDA. Razvoj terapije pa bo družino stal okoli dva milijona evrov.

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Gene Therapy in the US Offers Hope for 11-Year-Old Lana with Rare Genetic Disease

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Genska terapija v ZDA edino upanje za 11-letno Lano

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